Friday, May 22, 2020

Backwards

"There are no mistakes, no coincidences. All events are blessings given to us to learn from.” ~ Elizabeth Kubler-Ross

In my previous post I wrote, “I can't even go back and read where I was; what I thought; my hopes, my dreams, my life, in any of those years prior to now. I think it would crush my spirit to do so.”

Well, curiosity made me go back, and fatefully so, because somehow - completely randomly - I saw the title of a post I wrote called, “Eskimos and Sufferingclicked on that post. It was written May 10, 2010 - just over ten years ago! And I read it feeling like I was reading the words of some wise person who resonated with me and what I am going through presently. Why was I so much wiser ten years ago than I am now? *smh* 

It turns out going backwards didn’t crush my soul, at all; it renewed it! 

Thursday, May 21, 2020

Circumstances

"People are always blaming their circumstances for what they are. I don't believe in circumstances. The people who get on in this world are the people who get up and look for the circumstances they want, and if they can't find them, make them." ~ George Bernard Shaw


Wow! It feels like forever since I last wrote a post. 

*Deep sigh*

It's not that I've quit. It's not that I've given up. It's not that I've said, I'm done. I'm not... done. Far from it! 

But, oh my word, I'm not sure how in the world I'm going to get what I started out believing I would get when I began writing this blog over 10 years ago!!! It's insane! 

I can't even go back and read where I was; what I thought; my hopes, my dreams, my life, in any of those years prior to now. I think it would crush my spirit to do so. 

I feel - no, I know! - I'm in some serious uncharted territory! I know that I've linked to older women having babies late in life, but there's so few... and none - to my knowledge - with my kind of story... my own 46 year old eggs, and over ten years frozen! 

There will be, in future years, when it becomes more common for woman who freeze their eggs in this generation to have babies at whatever age they choose. But that's not how it is now. That doesn't help my situation presently! And I have no advocate to help me through this process;  I have no one to turn to who can say, "This is what I did when I was in your situation" or "This is how things turned out well for me." 

Because, for all intents in purposes, I feel absolutely fucked!

OMG! I stopped typing to go to an article I had read several months ago when I was trying to find the reasoning behind why my fertility clinic in Chicago used 55 years old as their cut-off age for IVF implantation as it didn't seem fair to generalize me in a category with all other 55 year old women! But I wanted to know where that number came from (and mind you, the doctor at my clinic had told me in the intervening years since September of 2009 when I had froze my eggs that the clinic had actually raised their cut-off age from 50 to 55!). The article I was searching for was from the ASRM - American Society for Reproductive Medicine - and it gave all the risk factors, stated in such a way, that it would almost be negligent for a doctor to proceed after that age. But the OMG that started this paragraph was that instead of finding that article what came up when I tried to google for it was absolutely positive for me to see and read! As you know, if you've followed my journey, I'm a "sign" watcher; a "sign" believer! Here's a link to two articles - one a research paper on ethics! - that I saw and opened up.

First, "Although the data on pregnancy outcome in older mothers and couples remain scant, the risks of gestational diabetes and pregnancy-induced hypertension in otherwise healthy women are significantly higher as the age of mothers in-creases and are particularly high after age 55. In most cases, however, these pregnancy-related complications are not severe enough to compromise the long-term health of women and their ability to care for children. A careful medical evaluation and age-appropriate health screenings should be performed before proceeding to treatment."

So, there ya go! About "signs" you're "searching" for one thing and then out of your "wrongly worded" google search you get something that becomes absolutely essential to your mental well-being in keeping your dreams; your hopes, your future... alive!

Second, an article titled, "Women Should Never Have an Age Limit on Fertility Treatment" how could a mid-50's woman not like this takeaway quote, "Doctors shouldn’t use social judgements to determine who’s eligible to be a mom by in-vitro fertilization."

So all of the above quotes and article helped me build back some of the hope I had lost over these past six months, or more. And I had lost hope. 

I wish I could say I am now full of hope, but I'm not (it's probably been three weeks since I wrote the above). Now more than ever I don't know how I can make my dreams come true. I just know I can't quit. 

*Sigh* I know this isn't what I should say, but I've thought of just not being here; not wanting to live in a world when I'm told that there's such an amazing place that comes after this one. I think of my father and my grandma, who both have now died long ago, and how much I'd like to be with them, where they are. At this stage of my life, I have nothing here except my mom... who turns 90 years old in just a week. In life there is so little margin for error. I mean, as an adult you have just a few (but very valuable!) things that make life worth living. Maybe you have a job you love and are good at. And in addition to the time spent at your job maybe you have a family you get to come home to; provide for; nurture. Even if you're divorced, maybe you have kids that make the heartache of divorce still seem like that "blessing in disguise." 

I guess my point is, is that certain things - imo, so few things - in life bring us happiness. I don't have any real thing, outside of my mom, that brings me happiness. I've had an illness since I was 27 years old that has only gotten worse over time (though in the past 10 months I've had some of my best days in ten years!) so I haven't been able to work outside of the caregiving I do for my mom. People have said to me, "Why don't you volunteer somewhere?" And I'm like, if I could manage to volunteer I could have a freak'n job! But what would that job be? I have no idea. I feel like I've had a million different jobs since I graduated college, none of which needed a college degree (thankfully I had full scholarship to college, otherwise I'd feel like it was a complete loss!). I'm not anything. I do lots of things okay and nothing well. And then there's even a dichotomy there... because I feel as if there is untapped potential inside me (and this is completely outside of me believing that I would be a good mother to my children) that just can't seem to be tapped. It's just frustration on top of frustration. How long can you live like that without starting to think of ways of not living like that?

But I have two things that make me try to keep going; to keep believing; to keep having faith that the life I've always dreamed of will manifest; that those circumstances will be found... or I'll find a way to make them! And the two things are my mother, whom I love more than life itself, and the nine frozen oocytes stilled in darkness in some cryopreservation tank in Chicago. Somehow, I still intend for them - and me - to find the Light! 

Sunday, September 8, 2019

Happy Has No Age

"It is never too late to become what you might have been." ~  George Eliot


This is a magical story! It’s about never giving up. It’s about finding your own happiness.  It’s about silencing the judgement of others. It’s about knowing what is right for your own soul. It’s about believing in miracles. It’s about happily ever after. It’s about Amen! 

Monday, August 26, 2019

Once Upon a Lifetime

Love is composed of a single soul inhabiting two bodies. ~ Aristotle


Something happened four months back that is still shaking up my world in what feels like a tragic way. 

It started with a series of events having to do with my mom. 

Firstly, on a Wednesday afternoon I had to call 911 to have my mom taken to the hospital because - though she was on antibiotics - she was not recovering from a UTI. In the past nearly 3 years I had done everything - including learning to do in/out catheterization on her daily - up to the last resort measure of having her get a supra pubic catheter put in, to try to alleviate her chronic condition fighting UTI’s. If she got admitted to the hospital I felt like they could get her on the right antibiotic and, in addition to that, have the supra pubic catheter surgically put in while she was there. We had reached that last resort treatment and my goal was to give my mom a chance at being old without her body constantly fighting an infection. 

Her long story shorter... she got admitted, Monday the surgical procedure was done, and on Friday the hospitalist - the fourth one in my mom’s ten days there - called to talk to me about releasing her. 

I had previously met each of the three prior hospitalist that had worked on my mom’s case. I had not met this fourth one - Dr. B. 

Dr. B related to me on the phone specific thoughts he had regarding my mom that dumbfounded me.

First, he told me that she had dementia. Second he thought she should be released into hospice care. Now, I’ve lived with my mom for over twelve years. I have been her primary caregiver when that became necessary. I’ve added private caregivers in the past year as the job of taking care of my mom became more overwhelming. And though I would definitely state my mom has age-related  memory loss; I consider her to be pretty damn sharp! Hell, I have to ask her the name of things I can’t remember! In addition to that aspect of her overall health, I felt sure the urologist would not do a surgical procedure on an 89 year old women he felt was already in need of hospice care. So hearing this Dr. B tell me the things he was saying about my mom felt like either a real disconnect with me or with him. I felt like it was him, but it made me second guess my beliefs; he made me wonder if I was too close to the situation to see it with clear eyes. I started off seated when I began the call but I quickly got up and began pacing back and forth as I listened to him try to convince me of something I didn’t believe. I mean, my mom is 89; it’s not like I think she’s going to live forever; I don’t know how long she has. She has a good working heart, but she has an anatomy problem which makes UTI’s a constant threat. An infection can develop quickly and ultimately will probably be the cause of her death. But I felt like she still had life left to live. I felt like her infectious disease doctor, her urologist, and her GP all believed the same thing. I didn’t understand why this hospitalist - who had seen her for the very first time that morning - was somehow viewing my mom in the way he was. 

Ultimately, by the end of the conversation I felt like Dr. B was frustrated with me (for not agreeing with his analysis) and I was annoyed at him because I didn’t believe he had any real comprehension of my mom. But as soon as I hung up the phone I remembered that I hadn’t got to ask him the two most important questions I needed answers to before I brought her home. So I had to call back. Fortunately, I was able to get him, but I could tell he was impatient... like, “I just gave you 20 minutes of my valuable time, what do you want now?” First, I asked him about the blood in my mom’s catheter bag. Was that normal? He proceeded to tell me he wasn’t aware of that problem and would go in her room as we spoke and take a look. That gave me more insight into him and more confidence in me! Second, I told him I wasn’t going to let my mom leave the hospital without the lose-dose antibiotic prescription that the urologist had told me he wanted my mom on. To that Dr. B replied with something along the lines of, “Well, research doesn’t show the efficacy of such a treatment.” At that point I rolled my eyes and thought - though I didn’t express it out loud - you mean to tell me you think you’re smarter than both my mom’s infectious disease doctor and her urologist in consultation with one another on what protocol they think would be most effective in treating her chronic infections? I didn’t care what he had to say, I wasn’t leaving the hospital without the prescription so he had better call the urologist and get it (though I’m sure I used as much diplomacy as I could conjure up under the circumstances)! He told me he would get in touch with the urologist and we hung up for the second time. 
At that point he had so confused me 
about my mom that I wanted to hurry to get dressed and out the door so I could put my eyes on her and find out if there was something he was seeing that I was missing. 

Within an hour I was in the hospital and made my way to the nurse’s station before I even went in to see my mom. I was standingthere when I saw a white coated person out of the corner of my left eye walking up the hall in my direction. Ugh, I thought, I absolutely do not want to talk to this Dr. B. who I felt sure it was. I tried to appear invisibleto him and leaned in closer to talk with the nurse at the desk waiting for the doctor to pass me by and continue up the corridor. 

But to my annoyance he didn’t continue walking past; I felt him stop right behind me. I didn’t turn around. I was still hoping he would move on. He didn’t. I had the feeling that he was trying to figure out if I was the the girl he had spoken to on the phone not long before. I also felt he was trying to remember what my name and my mom - his patient’s name - was and he was stuck and he didn’t know exactly what to do. His pause was so awkwardly long that I finally felt I had to turn around! So I did. The next five minutes were some of the strangest and clearest minutes of my entire life. 

I spoke first. I asked him if he were Dr. B.
He answered that he was. I introduced myself saying I had spoken to him earlier about my mother and gave him her name. Then he began to tell me that he had spoken with both my mom’s infectious disease doctor and her urologist and the treatment plan (the one he outright dismissed when I told him of it in our earlier phone conversation!) was “something I hadn’t thought of.” But from the moment I turned around to meet him face to face - even as I spoke first and he continued the conversation - I had what I can only describe as an out of body experience. It might not have been that, but if it wasn’t, it was as strange as I could imagine that experience might be.

We were standing no more than three feet away. And almost instantly I was looking atmyself pressed against his chest with his arms completely wrapped around me. I watched as my right cheek lay against his chest and his chin rested atop my head. At the same time I viewed myself within his arms I immediately felt both comfort and protection. As I watched myself being held by him we continued our conversation. As odd as it may be to say, somehow I was able to be present both in talking with him and also in the thoughts and feelings that were coming at me that had nothing to do with what was being said. And even as I continued to marvel at watching me in his embrace and feel the emotional strength he was imparting to me, I also “saw” to the right of where we were standing something like an invisible river of conversation; in essence, it was another strong feeling that was emanating out from us. And the feeling was that I could talk to this guy forever! Like, there was nothing I couldn’t say to him or him to me. It was also beyond that... it was the feeling of being mentally stimulated for the rest of my life! 

Notice my first thoughts and feelings had nothing to do with physical attraction. There was a surprising feeling of attraction there, but it was as if it were only the frame to a painting; it enhanced the art, but it wasn’t the art. And in this case the “art” was the mental, emotional and spiritual connection I felt. And I say, “surprising” feeling of attraction because he wasn’t my type. He was the opposite of my type, with average looks, lol. I mean, I don’t know, I just wouldn’t think of him as being a guy that stopped me in my tracks; he was “normal.”

After our five minute conversation we parted ways. I went to my mom’s room to visit with her and sat on the cot the hospital had provided for my niece - and later me - to sleep on. As I sat there I couldn’t help but go over in my mind what had just happened! I had seen that he had a wedding ring on so that made it even harder for me to understand what the Universe - knowing my situation in deeply desiring an intimate, loving relationship - meant by placing this guy - this guy who it felt like was some sort of soul connection - in my life. And outside of those thoughts I also wondered if he had felt anything towards me? 

I’m single and looking. But I would want to assume that some guy I was soulfully attracted to - if married - would be the kind of guy that was in a deeply loving and committed marriage. Period. In other words, I don’t want my soul to be attracted to a cheater type guy; I would hope it was attracted to the best of the best kind of man. But him being happily married doesn’t preclude him having felt something - whatever, and however, that something might be - in meeting me. I longed to know his feelings.

About fifteen minutes later the nurse was changing my mom’s IV bag and was explaining that she thought one of my brothers - I have three - had come to visit my mom that morning and was explaining what he looked like so I could figure out which of my three brothers it might have been. At that moment Dr. B - who I had not seen standing in the doorway - said, because the characteristics the nurse had used to describe my brother were similar to Dr. B - said in a jesting way, “Are y’all talking about me?” I looked over at him standing there and my feelings for him were so unusually strong and bewildering. 

He then said he wanted to text my mom’s urologist about whether or not she should get out of the hospital that day based on the blood in her urine catheter bag. And thenhe did the most unexpected thing... he sat down next to me on the cot! My mom has probably been admitted to the hospital fifteen times in the past three years, with more E.R. visits than even that, and I have never had a doctor do something so relaxed. Doctors - even the ones with great bedside manner - keep, and understandably so, theirdoctor/patient distance. They’re often nice,but in a very formal way. I’ve never once come across a doctor who made themselves so comfortable in the midst of strangers. 

So he sat there next to me and everything within me was aching to just move myself into the space between us, to feel my shoulder leaning against his, to feel my leg resting beside him. He got his phone out wrote and sent the text and then told me he wouldbe back when heard something. 

No more than a forty-five minutes later he returned. He told me that the urologist felt like my mom could be released, but that in his view, because her creatinine level was 8.8, he would like to have her stay one more night to make sure it didn’t go lower. Obviously I didn’t want to take my mom out of the hospital - especially going into a weekend - only to end up having to bring her back, but one of my other very real concerns was the hospitalist situation. As I said, Dr. B was my mom’s fourth hospitalist! And trust me, as much as each of them writes theirpatient notes with the detail needed for the hospitalist who follows, the hospitalist who follows ultimately comes to the patient withtheir own medical perspective (exactly how Dr. B came to, what I considered, was his messed up analysis of my mom!) and proceeds - good or bad - from there. I didn’t want to deal with a fifth hospitalist. So I askedDr. B if he would be working the next day. He told me he wouldn’t be. I explained to him my frustration and concerns and when Iwas done he said, “Hold on. I have a thought. Let me look into it and I’ll be back.” 

He left the room and I tried to let my thoughts of him leave too. It was impossible. But about thirty minutes after he had gone, he was back... with another doctor! He introduced this doctor to both my mom and I. I had felt like I had some familiarity with this new guy. And Dr. L made me recall it was another time when my mom had been to that hospital and he had been the hospitalist who had taken care of her. As many patients as he had had since then he remembered her, and speaking with me then, as well. Dr. B continued by saying that the Dr. L was going to be my mom’s hospitalist the next day. He reiterated that he had told Dr. L of my concerns and that he had brought him up to speed on everything regarding my mom’s remaining issues, assuring me she would be in good hands and that if all went smoothly my mom would be able to go home the next day. It was exactly what I needed to make the decision to have her spend another night there. 

So, in the end, that “out of body” experience I had had with Dr. B earlier; that feeling of being held, comforted and protected by him - a total stranger - ultimately, is exactly what he provided me in his own way. 

I didn’t understand the experience I had with him; it both excited and disturbed me. And I remember after leaving my mom and driving home I broke down and cried; uncontrollably tears flowed. I felt utterly sad. Sadness that I had met a soul connection - beyond even my own imaginings of what that might be  - and knew that because he was married, it was a relationship that had no where to go; finished before it could even have a beginning. It was depressing. And that I would not even be able to learn if he had had anything remotely close in experience to mine left me dispirited, as well. 

So, all these months later, and still frustrated and downcast about why such an experience would happen without any seeming reason; no positive outcome, I got back in touch with my “guru-ish” counselor (who had moved away some years back) and she gave me a much needed perspective. Just basically letting me simply realize that the enormity of what happened; the rarity of it, was in itself the Universe allowing me to see, feel, and experience its expansiveness and ability to surprise at any moment in time. She wanted me to know that it was the Universe’s way of letting me to believe that my dream: of having a guy love me as intimately as I loved him, was closer to me than ever before. I can only hope so. I’ve waited a long time in this life to find that blessed happiness. I’m ready! 

Monday, April 1, 2019

But, Life

"It always seems impossible until it's done." ~ Nelson Mandela

*Deep sigh*

It didn’t work. 

Fortunately, I’m not talking about the IVF. But the guy I asked to be my sperm donor, the guy who said “yes” to being the father of my child after many hours of conversation together, the guy I was supposed to travel to Chicago with to begin the end of this journey, backed out at the last minute. 

I had started to suspect something might be wrong a few days after he had given me his final affirmative answer. I had texted him about the travel arrangements and asked if he would want to stay an extra day in Chicago to go to a baseball game and I didn’t hear back. When I didn’t hear back, I texted him I had needed to make an “executive decision” in order to get the best airfare price so I was going to leave the arrangements just as we had discussed. But when another day went by without hearing from him, I decided that I would drop by his house to check in and make sure everything was okay. I think somewhere in my posts I must have written about how “J” is a really good-souled guy, but with deep personal problems... namely alcoholism. He had been six weeks sober when we had been talking about this “brighter future” we might live with a newborn baby. He seemed excited.

But when I did stop by his house in the late afternoon, he didn’t answer the knock on his front door. I could see through the blinds that the big screen tv was on ESPN. I knocked more but - though I suspected he was on the couch where I couldn’t see him - he never answered. I went about running errands around town and then when it got dark I parked up the street and walked back to his house. By this time, surrounded by the darkness outside, I could clearly see him sitting on the couch watching the tv in probably the exact same place as he was earlier in the day. I called but he didn't answer. I texted him that I would drop by his house the next day, though I had no intention to. I just wanted to make him answer me. Finally, two days later he texted me, “L I’ve prayed about this for days. I’m just not able to do this. I hope we can remain friends.  J”

I was not just flabbergasted - because, like I said, we had spent a great deal of quality time in the previous month discussing everything! - but upset, as well. I probably should have waited - though maybe it wouldn’t have made much difference - but I texted him back immediately saying, “Yep. Totally. It will take a long time to get back to the level of friendship I have had with you b/c you basically fucked me over, but def appreciate your honesty now. I’m happy actually... because I know my kids will have the father that they deserve! I don’t want them to have someone that doesn’t think they’re the shit, lol, because I just know they will be awesome personified! Good luck in your life; I wish you all the best! Have a good one! Laters : )“

And now that has been six months ago.

I actually forgave him probably within a month-and-a-half. I just had this weighty feeling - whether it was true or not, I don't know - that maybe him making the kind of life-altering decision about becoming the father of a child - even though he wouldn't be financially responsible - was what made him go back to drinking alcohol. I also thought, and again, this was just a feeling, not anything I knew for sure, that he may have talked with his mom about what he and I had agreed to and she - being the controlling figure in his life that she is - may have said that if he went through with his plans, he would have been cut out of his inheritance. And J being the lost soul that he is - and mind you, he comes from a very smart, high-achieving family... his father and brother are both cardiologist and his sister is an attorney - a guy who has been down-on-his-luck for most of his adult life, fighting the disease of alcoholism, and really surviving financially off the good-will of his parent's - just couldn't afford to be left feeling as if his life might be altered too adversely for what it was worth to leave the legacy of child to this world. Nevertheless, it felt devastating to me. But I had to move on. I had to keep planning; keep trying to get the baby I so desperately wanted; the baby I felt was out there waiting to come to me.

To be continued...



Monday, September 17, 2018

All These Years

“Peace is the beauty of life. It is sunshine. It is the smile of a child, the love of a mother, the joy of a father, the togetherness of a family. It is the advancement of man, the victory of a just cause, the triumph of truth.” ~  Menachem Begin

After all these years my hour of reckoning is near. I have recently talked to my IVF doctor and I finally found a partner that wants to be the father of my child(ren)! In the next week I will travel up to Chicago with him, at which time six of my nine eggs will be thawed and his sperm will fertilize them. The potential embryos will then be frozen (yeah, these kids have to come out of two thaws!) because - from my unnderstanding - the genetic testing that needs to be done on the embryos to ensure they will be viable for implantation takes a couple of weeks.

So let me re-hash all the miracles that need to take place in order for it to seem as if I got one miracle... a baby!

First miracle, my just-shy of 46 year old eggs have to be good, i.e., they need to be normal and viable. Second miracle, those eggs which have now been frozen eight years need to come out of the thaw intact and remain viable. Third miracle, my eggs need to be fertilized with healthy, viable sperm. Fourth miracle, the resulting fertilized egg needs to be incubated to the embryo stage and remain viable going into another freeze. Fifth miracle, the embryos need to be ascertained by genetic testing  to be healthy - genetically viable. Sixth miracle, my 55 year old post-menopausal body needs to be healthy enough to receive the embryos upon implantation so that they can begin to grow inside me. Seventh miracle - and this one relates to the sixth miracle - I need to overcome my own DNA’s propensity for miscarriage because of having both the MTHFR gene mutation and being homozygous for COMT 2. Eighth miracle, I need to carry my healthy fetus to full term, or near enough, to give birth and have my child survive and thrive. I feel like I’m missing several other miracle parts, but these are definitely some of the bigger miracles to getting that “one” miracle.

Let’s get this party started!

Friday, January 12, 2018

Small Packages

Miracles sometimes come in small packages, but to this 48 year old mother and 50 year old father, it probably felt like they got the biggest gift package in the whole world!